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Effect of Chronic illness & disability on the child & family

Quiz yourself by thinking what should be in each of the black spaces below before clicking on it to display the answer.
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Question
Answer
show 3  
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show False - dependency on medications or diet is a category  
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One of the categories of chronic conditions is need for more medical care and ____ typically used by a healty child of the same age   show
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show Children with special healthcare needs (CSHCN)  
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show 18-20%  
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show increased  
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show surpassed  
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Name the three most common chronic childhood diseases   show
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Muscular dystrophy, hemophilia, sickle cell, and CF are examples of ____ chronic conditions   show
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show Congenital defects or insults during fetal development  
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(sepsis, prematurity, IVH) that lead to conditions such as BPD, ADD, and vision and hearing impairment are examples of ____ chronic conditions   show
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condition such as brain injury, cancer, HIV, infection, near drowning, and mental health problems are examples of ____ chronic conditions   show
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Many infants and children with a chronic condition become ____, dependent on a medical device for survival or prevention of further disability.   show
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Technology dependence is categorized into what four aspects of care   show
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show one stage to the next  
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show neuropsychological  
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show sensorimotor  
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show restrictions  
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show milestones  
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show Initiative  
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Effect of Chronic Conditions on the Preschooler include, Begins to recognize association between body parts and ____ associated with the chronic condition   show
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show Magical Thinking  
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show Interference, self-confidence and purpose  
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Too much protection prevents the child from learning realities of the world is an effect of chronic conditions on the ____.   show
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show School-age Child:  
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Effect of Chronic Conditions on the School-age Child: Develop a sense of accomplishment and industry - This can result in feelings of ____ and a low self-concept as child recognizes the differences between themselves and peers.   show
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Early school-age children have an increased understanding of their condition and are capable of participating in certain aspects of ____ and ____.   show
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Late school age begin to understand the long-term needs associated with their condition. They understand more about the management of their condition and are capable of assuming some ____ of care.   show
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show learning  
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show self and peers  
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Effects of Chronic Conditions on Adolescent include Develops an understanding of the short and long-term ____ related to his condition   show
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show withdraw  
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T/F Today families assume the major burden of providing care and coordinating comprehensive and complex responsibilities for the chronically ill or disabled child   show
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The goal of care is to minimize the ____ of illness and to maximize the child’s potential   show
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The family views the care of a child with a chronic condition as a ____ part of life, rather than as something outside of routine.   show
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show caregiver burden  
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show False - coverage limitations and out of pocket expenses  
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Education for All Handicapped Children Act of l975 was renamed to ____ in 1990, which "free and appropriate public education” that included special education and related services rendered at public expense and under public supervision   show
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show infants and toddlers  
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show Individualized Education Plan (IEP)  
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show child  
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What plan is developed for the child with medical conditions that need to be managed within the school setting, may be developed simultaneously with the Educational Health Plan for the child with a health problem and coexisting functional impairment.   show
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What plan focuses on assisting the individual to receive vocational training and moving successfully from the home into other community living settings as they grow older.   show
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Individualized Transition plan (ITP) is included in the development of an Individualized Education Plan for each child with a ____ who is 14 years or older.   show
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Initial Diagnosis of a child with a chronic condition or disability should End on positive note by emphasizing child’s ____ and potential for development as well as treatment or rehab.   show
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show Shock, disbelief, denial, and anger  
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show adjustment - Characterized by an open admission that the condition does exist  
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Responses often encountered during the adjustment phase include:   show
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During the period of adjustment four types of parental reactions can significantly affect the child’s eventual response to his chronic condition, they are:   show
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show reintegration  
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Social reintegration also takes place in the fact that the family broadens its activities with relationships ____ the home with the child as a participating member   show
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Family is particularly motivated to learn about child’s illness and its restrictions and how they can function within those confines is apart of which phase   show
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show chronic  
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Parental absence from home may instigate ____ or adjustment difficulties with younger sibs   show
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show resentment  
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show guilt, caused  
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show independence and maturity  
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Encourage child to verbalize concerns. If child cannot or will not do this encourage ____   show
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show False - the child should be  
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Identify areas child can ____ to decrease feelings of helplessness   show
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Apply the (same - different) family rules to the chronically ill child as to the well siblings or peers (discipline as appropriate)   show
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The optimistic belief that things work out for the good and an emphasis on the positive qualities of the situation. Statements such as “God has chosen our family to care for this special child” reflect the religious philosophy is an example of   show
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show marital  
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show True  
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show realize  
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