Effect of Chronic illness & disability on the child & family
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| A chronic condition is a health problem that at the time of diagnosis is expected to last longer than ____ months | 3
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| T/F dependency on medication but not diet is a category of chronic condition | False - dependency on medications or diet is a category
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| One of the categories of chronic conditions is need for more medical care and ____ typically used by a healty child of the same age | Services
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| Those children who have or are at risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services beyond that required by children generally is a defination of ____. | Children with special healthcare needs (CSHCN)
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| More recent data of Children with special healthcare needs (CSHCN) suggests that ____% of children in the US have a chronic physical or mental condition | 18-20%
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| One of the reasons more children have Chronic Illness and Disability is due to the life expectancy for these children has ____ for many childhood diseases. | increased
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| One of the reasons more children have Chronic Illness and Disability is due to chronic illnesses have ____ acute illness as the major health concern. | surpassed
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| Name the three most common chronic childhood diseases | Respiratory disease (primarily asthma), Impairment of speech and sensory functions, and Mental and Nervous system disorders
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| Muscular dystrophy, hemophilia, sickle cell, and CF are examples of ____ chronic conditions | Genetic or inheritable chronic conditions
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| Spina bifida, cleft palate, CP, maternal substance abuse are examples of ____ chronic conditions | Congenital defects or insults during fetal development
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| (sepsis, prematurity, IVH) that lead to conditions such as BPD, ADD, and vision and hearing impairment are examples of ____ chronic conditions | Insult associated with birth and care afterward
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| condition such as brain injury, cancer, HIV, infection, near drowning, and mental health problems are examples of ____ chronic conditions | acquired through injury or acute medical
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| Many infants and children with a chronic condition become ____, dependent on a medical device for survival or prevention of further disability. | “Medically Fragile”
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| Technology dependence is categorized into what four aspects of care | Respiratory support (ventilator, O2, Trach), Intravenous medications, Nutritional support (parenteral and enteral), and other medical services i.e. dialysis
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| Nurses must plan care that promotes the child’s successful progress from ____ to ____ | one stage to the next
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| Effect of Chronic Conditions on Infant Growth and Development includes Adverse effects on ____ development with exposure to constant noises, bright lights, frequent handling and painful procedures | neuropsychological
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| Effect of Chronic Conditions on Infant Growth and Development includes Decreased opportunities to experience and learn through positive ____ experiences. | sensorimotor
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| Effect of Chronic Conditions on Toddler Growth and Development with Interference with the development of Autonomy includes Child may have ____ on his movement, play, behavior, or social interactions | restrictions
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| Effect of Chronic Conditions on Toddler Growth and Development with interference with the development of autonomy includes, may interfere with meeting normal ____ of this stage | milestones
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| Effect of Chronic Conditions on the Preschooler include inability to develop ____ and purpose | Initiative
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| Effect of Chronic Conditions on the Preschooler include, Begins to recognize association between body parts and ____ associated with the chronic condition | problems
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| Effect of Chronic Conditions on the Preschooler include, ____ :May believe that his or her thoughts or behaviors caused the condition or feel that the condition is some form of punishment | Magical Thinking
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| potential interferences with development of a preschooler with a chronic condition include ____ with learning about environment , Social relationships, Decrease ability to develop ____ and decreased chances to learn a sense of ____. | Interference, self-confidence and purpose
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| Too much protection prevents the child from learning realities of the world is an effect of chronic conditions on the ____. | preschooler
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| Develop a sense of accomplishment and industry - Gain social skills, peer interaction, master new information, learn to cope with stress and acquire self-sufficient skills is compromised for what stage of childhood with a chronic condition | School-age Child:
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| Effect of Chronic Conditions on the School-age Child: Develop a sense of accomplishment and industry - This can result in feelings of ____ and a low self-concept as child recognizes the differences between themselves and peers. | inferiority
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| Early school-age children have an increased understanding of their condition and are capable of participating in certain aspects of ____ and ____. | monitoring and care
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| Late school age begin to understand the long-term needs associated with their condition. They understand more about the management of their condition and are capable of assuming some ____ of care. | responsibility
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| A school-age child with a chronic condition may find they have ____ difficulties and other limitations when they enter school | learning
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| Effects of Chronic Conditions on Adolescent include Heightened awareness of differences between ____ and ____ often occurs | self and peers
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| Effects of Chronic Conditions on Adolescent include Develops an understanding of the short and long-term ____ related to his condition | consequences
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| Effects of Chronic Conditions on Adolescent include May ____ from social activities and relationships | withdraw
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| T/F Today families assume the major burden of providing care and coordinating comprehensive and complex responsibilities for the chronically ill or disabled child | True
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| The goal of care is to minimize the ____ of illness and to maximize the child’s potential | manifestations
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| The family views the care of a child with a chronic condition as a ____ part of life, rather than as something outside of routine. | normal
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| Unrelenting pressure and anxiety related to providing daily care to a child with disabilities while meeting other family obligations is a major stressor for these families is referred to as ____ | caregiver burden
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| T/F Insurance covers healthcare expenses for chronically ill or disabled children | False - coverage limitations and out of pocket expenses
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| Education for All Handicapped Children Act of l975 was renamed to ____ in 1990, which "free and appropriate public education” that included special education and related services rendered at public expense and under public supervision | Individuals with Disability Education Act (IDEA)
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| Education of the Handicap Act Amendments of 1986 directed states to develop comprehensive, multidisciplinary programs of early intervention services for which age group (was age 3-21) | infants and toddlers
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| What plan was developed for the child in the school setting with cognitive, motor, social and communication impairments who needs special education services. | Individualized Education Plan (IEP)
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| Individualized Education Plan (IEP) is Jointly planned with the school administrator, teacher, parents, and other special support professionals as needed. The ____ is also included in this process when possible. | child
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| What plan is developed for the child with medical conditions that need to be managed within the school setting, may be developed simultaneously with the Educational Health Plan for the child with a health problem and coexisting functional impairment. | Individualized Health Plan (IHP)
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| What plan focuses on assisting the individual to receive vocational training and moving successfully from the home into other community living settings as they grow older. | Individualized Transition plan (ITP)
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| Individualized Transition plan (ITP) is included in the development of an Individualized Education Plan for each child with a ____ who is 14 years or older. | chronic disability
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| Initial Diagnosis of a child with a chronic condition or disability should End on positive note by emphasizing child’s ____ and potential for development as well as treatment or rehab. | strengths
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| Parental Reactions: Grief process to an initial diagnosis of a child with a chronic illness or disability includes: which may last from days to months | Shock, disbelief, denial, and anger
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| ____ gradually follows the shock phase | adjustment - Characterized by an open admission that the condition does exist
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| Responses often encountered during the adjustment phase include: | feelings of guilt and self-accusation as well as anger and bitterness
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| During the period of adjustment four types of parental reactions can significantly affect the child’s eventual response to his chronic condition, they are: | overprotection, rejection, denial, and gradual acceptance
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| The adjustment process culminates in the development of realistic expectations for the child and ____ of family life with the disability or illness | reintegration
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| Social reintegration also takes place in the fact that the family broadens its activities with relationships ____ the home with the child as a participating member | outside
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| Family is particularly motivated to learn about child’s illness and its restrictions and how they can function within those confines is apart of which phase | acknowledgement
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| Events trigger the emergence of this that remind the parents of what could have been is an example of ____ sorrow. | chronic
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| Parental absence from home may instigate ____ or adjustment difficulties with younger sibs | behavior
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| ____ is reported when their special sibling is overprotected or indulged in by the parent | resentment
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| Sibs also may feel _____ arising from the belief that they ____ the disability or illness | guilt, caused
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| Children in families with a disabled child often exhibit greater ____ and ____ than their peers | independence and maturity
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| Encourage child to verbalize concerns. If child cannot or will not do this encourage ____ | toys to play out his feelings
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| T/F the child should not be in as many decisions as possible relating to his care | False - the child should be
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| Identify areas child can ____ to decrease feelings of helplessness | control
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| Apply the (same - different) family rules to the chronically ill child as to the well siblings or peers (discipline as appropriate) | same
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| The optimistic belief that things work out for the good and an emphasis on the positive qualities of the situation. Statements such as “God has chosen our family to care for this special child” reflect the religious philosophy is an example of | long-term coping strategy
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| The ____ relationship is the primary source of support and best predictor of coping behavior and adjustment | marital
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| T/F, it is often difficult for parents to access and find appropriate services in the area they live | True
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| As families confront the challenges of caring for a child with a chronic condition nurses can help families ____ their abilities and strengths, identify problems, develop problem-solving strategies, and identify new coping strategies. | realize
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