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ch_12
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| Question | Answer |
|---|---|
| Which children with chronic conditions would be most likely need to be cared for in a long term care situation? | Genetic conditions; Congenital defects or insult during fetal development; Insults associated with or following birth; Conditions acquired through injury or acute medical condition |
| Define medically fragile conditions | Child with life-threatening illness or chronic condition as result of complex illness, prematurity, or congenital defect. |
| At what age is it reasonable to teach children to be more independent in the management of their chronic conditions? | Early school-age children have an increased understanding of their condition, and they can participate in certain aspects of monitoring & care. |
| What psychological and developmental problems would you expect a teen with a chronic condition to suffer from? | some are unable to cope with recognizable differences between themselves & healthy peers, and they withdraw from social activities & relationships or are drawn to a peer group that may negatively influence behavior just to be accepted by peers. |
| Define the stages that parents go through before accepting the idea that their child has a life-long chronic condition. | Initial reactions are shock & denial, anger, guilt, and a sense of hopelessness. Chronic sorrow is believed to be a coping mechanism that allows parents to grieve periodically and permits them to carry on with responsibilities at other intervals. |
| Identify the ways that parents can prevent care-giver burnout. | Spousal support is essential to manage all the family & childcare requirements. Encourage the family to participate in support groups; to take respite time from the child’s care, assist them in determining satisfactory arrangements for respite care. |
| Be able to identify parental statements suggestive of care-give fatigue. | Caregiver burden is unrelenting pressure & anxiety of providing care to a child with disabilities day after day. Mothers may be unable or not have energy to meet their own personal needs for health care. Social isolation may be experienced |
| How can Nurses partner more effectively with parents trying to compose an Individual Education Plan? | IEP is developed for a child with cognitive, motor, social, or communication impairment who needs special education services.IEP is jointly planned with school administrator, school nurse, teacher, parents |
| How can toddlers be encouraged to be more independent when they have disabling conditions? | By offering the child choices when possible, such as which color of gown to wear or which food to eat first. Help parents recognize toddler’s capabilities & allow the child to practice & learn the skill. |
| What is one difficult and potential ethical dilemma that may confront parents of a child with a chronic, disabling condition? | withholding & refusal of treatment; advance directives (DNR); genetic testing & screening programs; sexual & reproductive rights, sterilization of adolescents with mental retardation;organ donation & rationing of care; research |
| What are some realistic goals for a child with cerebral palsy? | Child will attain maximum physical abilities possible; child will receive nutrients needed for normal growth; child will engage in activities that maximize growth & development. |
| Identify activities that are associated with Family Stagnation, Family Normalization, Family Isolation. | Through normalization, family views care of the child as a “normal” part of life, rather than an inconvenience or something outside of their routine. Families develop flexibility in management of the treatment plan, making life easier for the family. |
| How do siblings of different ages/developmental levels react to a child with a chronic condition? | Negative responses predominate and include feelings of jealousy, resentment, anger, depression, worry, and anxiety. Siblings who adjust more positively are those who are older at time illness occur, have a more cohesive family, positive communication |
| How would the nurse best serve a school age child with a chronic condition to understand his care/management? | Begin to identify aspects of child care that child can learn to assume under parent’s supervision. Link the child to a peer support group to promote social interaction & to help the child recognize that others also have same condition. |
| What are the transitional needs of an adolescent with a chronic condition? | Discuss sexual maturation & importance of protected sexual activity. Need to plan for vocational & health care transitions.Encourage them to have safety nest of friends who |
Created by:
zoranrula@yahoo.com
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