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246 Exam 2
Ch 10 & 11
| Term | Definition |
|---|---|
| family management style framework FMSF | understand how families who have a child with chronic conditions integrate management of the chronic illness for the child into everyday life with the family |
| thriving | parents view child through normalcy |
| accomodating | parents usually see their children from the lens of normalcy and place child in the foreground |
| enduring | parents fluctuate view between normal and tragic; some day can handle others are a burden |
| struggling | inconsistent with how they view their child relative to normalcy and vulnerability |
| floundering | negative view towards child, seen as tragic |
| family health model FHM | considers traits, interactive processes and life experiences that influence health and illness |
| contextual | surrounding environment of the family that influences things |
| functional | stressors, communication style and behavior of the family, responsibility |
| structural | routines that the family has put in place based on family issues |
| well being | a health state with actualized opportunities, minimized liabilities and maximized resources |
| caregiving | concern generated from close intimate family relationships, members developmental health and illness needs |
| cathexis | emotional bonds between individuals and family that result in member's emotional and psychic energy investments into needs of the loved one |
| celebration | shared meaning through celebration, tradition, special |
| change | nonlinear process |
| communication | primary ways children are socialized and families interact |
| connectedness | ways that system beyond family are linked |
| coordination | sharing of resources, skills, abilities and information |
| empowerment | systematic ways families vary in ability to incorporate medical regimens |
| remediation | need to make slight alterations in daily routines to fit illness care into pre existing routines |
| redefinition | a strategy where the emotional connections made during routine gatherings need to be redefined |
| realignment | individuals within the family disagree about the importance of different medical routines and need to be realigned |
| reeducation | when the family has little history or experience with routines and family life is dirsorganized |
| self management | includes self efficacy, self monitoring of illness and symptoms management |
| self management affected by | personal lifestyle characteristics, health status, resources, environmental characteristics, health care system access and navigation |
| family adaptation | interventions to assist families; co creating context for living, communicating illness, alternative ways for everyday |
| social support emotional | love, caring, sympathy, positivity |
| social support instrumental | actual things that others can do |
| social support informational | education and support groups |
| social support appraisal | feedback report and self evaluation |
| adolescents with chronic illness | parents play primary role; make appointments and communicate with providers, look at developmental and ability level to determine readiness for transition |
| siblings of children with illness | feelings of guilt, pressure to be the good child, loss and isolation |
| palliative care | improve quality of life, reduce suffering in people with life limiting illness, provide support and control pain |
| end of life care | provides in last days, weeks or months; allows comfortable and dignified death; finds meaning in death of a patient |
| hospice | form of end of life care, treatment discontinued, expected death within 6 months |
| bereavement care | care after death of patient, prevents or decreases prolonged suffering; follow up calls and referrals |
| palliative care principles | begins as soon as diagnosis, support and enhance QOL, inter professional approach, barriers to care are limited education and uncomfortable conversations; moral distress |
| surprise question | would i be surprised if this patient dies in the next 12 months |
| relieving patient suffering | control pain and symptoms, witnessing suffering is traumatic, involve patient in treatment and planning processes |
| advance care | letting others know personal future health and care preferences |
| advance directive | medical treatments, useful for eliciting patient preferences, all patients should be encouraged to make wishes known |
| goals of care | general goals not always about future preferences, related to advance care planning |
| physician assisted suicide and MAID | allows individual with terminal illness to end lives voluntarily through self administration of lethal medications; ANA prohibits nurses |
| signs of imminent death | decline physically, decrease alertness and social interaction, decrease food and liquid intake, hallucinations, confusion, agitation |
| nurse focus empowerment | providing information, providing encouragement and support, using specific strategies or interventions to increase family strength |
| adopt a normalcy lens | recognize the ongoing process or actively adapting to the child's evolving physical, emotional and social needs and establishing new family routines |
Created by:
ahommel
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