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Children w/Spina Bifida

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Question
Answer
what is the best defense against spina bifida?   women who are sexually active should take 40 mg (400 mcg) of folic acid/daily  
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myleodysplasia is?   interrupts the signal to the nerves  
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why can you see some stg in a muscle but limited at the level of dmg?   redundant nervous system - many nerves join others  
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musculoskeletal deformities   postural, scoliosis, joint deformities/contractures, crouched gait, vertical tali, hip dislocation  
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neurology impairments   motor paralysis, sensory dysfunction, (these 2 are like SCI), hydorcephalus, cognitive dysfunction, language dysfunction, seizures (10-30%), neurogenic bowel, neurogenic bladder (these are unique to SB)  
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How to tx hydrocephalus?   shunt to drain  
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in what way and what level is cognitive dysfunction   L5, typically low end of normal, often lack executive functioning skills (plan, execute), "cocktail party" syndrome, have good knowledge on a very limited amt of information  
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if L1 - L2 involvement affects.....   have no LE  
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S1 - S2, neurology impairment   neurogenic bowel & neurogenic bladder, sphincter doesn't close all the way, causes skin breakdown b/c they cannot feel when they are wet  
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what is a determining factor in ambulation & independence?   CNS INVOLVEMENT, primary determining factor, not just physical level.  
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what is a way to deal with cognitive dys?   use note cards with ICONS to help them through a process, like how to go transfer to a chair from a wheel chair.  
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when does the dmg occur causing SB?   in utero  
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primary focus of PT for SB?   focus on independence  
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PT care for SB   joint contractures & deformities, pressure sores, brace/wheelchair assessment, independent mobility/self-care  
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what causes a static joint contracture?   contracts at rest  
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dynamic joint contracture is caused by?   antagonistweak apposing muscle such as the anterior and posterior tibia,  
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what if they are L4 involvement but no CNS involvement?   functioning 100%  
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Habitualization is   teaching something new  
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rehabilitation   teaching something they once knew  
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if they are L4, what would you expect to see and why?   no paraneal, opposing muscle, 45 deg DF & inversion or forefoot abd  
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hip flexor contracture due to?   unapposing gluts  
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knee flexion contracture due to?   unapposing quads  
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PF contracture due to?   unapposing Tib anterior  
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Tx for contractures   low load/long duration (strap on brace to pull into position), ROM, positioning  
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with a 20 degree hip flexion contracture, w/AFO & crutches, what affect on gait?   diminish gait velocity to 44% of normal  
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10 degree hip flexion does what to gain?   reduces gait velocity to 20% of normal  
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what type of surgery would help dynamic joint contracture/deformity?   split posterior tib & put half the tendon higher up on leg to even pull  
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what causes pressure sores   usually due to lack of sensation of buttock, joint deformities & dec activity level are inc factors  
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what can help prevent pressure sores?   catheter thru belly button, pressure mapping, hourly wt shifts  
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why do SB develop severe pes planus   don't have dynamic stabilizers, spring lig & tibialis anterior & anterior  
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what level SB would require AFO?   L4, L5  
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what kind of AFO for S1?   orthotic  
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what level requires a KAFO?   L3, don't have control of hips, quads, locking jt for knee  
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what is GRAFO?   ground reaction AFO. gives advantage of longer lever arm  
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HKAFO is what level? is it functional?   includes a hip joint, L1, L2. not function, w/c is easier  
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THKAFO   not too functional b/c so difficult to get on & off  
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RGO's   reciprocating gait orthotic, walk with a circumduct, cost $5K, not functional. easier to get along w/wheel chair  
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Parapodium, how does it work and at what age?   helps develop the acetabulum w/WBing. Also helps with head (must have head control) and rotational control. Start around 9 mo. should use 20-30 min, 4-5 x day, not a passive device, add some tilting if possible  
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standing/ambulation benefits   improved bowel/bladder, prevention of bone loss, improved heart endurance, prevention of pressure sores & joint deformities, improved upper extremity stg & coordination, endurance  
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L1, L2 what ambulation trend?   Therapeutic or household walking in childhood or adulthood  
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T2-T12 ambulation   most use wheel chair in adulthood  
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Thoracic 2 to Thoracic 12 ambulation   therapeutic walking in childhood  
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L3 - L4 ambulation   household or community ambulation in childhood/adulthood, KAFO, loftstands maybe but wheel chair more efficient  
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functional trend of L3   most use wheelchairs as primary mode  
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how many L3 will achieve independence? how many working?   60% Ind, 20% actively in full time employment  
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L4, percentage ambulate as adults? independence? community ambulation?   20%, 60% Ind, 20% comm  
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L5 to S1 ambulation trend   community in childhood & adult  
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muscles affected at L5-S1   all gluts, hamstrings, gastroc (not soleus, will at L1)  
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L5 ambulation - what AD?   crutches are suggested in adults to dec energy expenditure & maintain alignment  
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L5, what % independent? full time work? part time work?   80% ind, 30% FT, 20% PT, (50% empl as adults)  
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S1 functional   excellent long term, some studies suggest high risk for heel ulcers, infection & amputation, use of heel cups may limit (no sensation)  
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how are independent skills assessed?   PT -new survey in SDC to evaluate function level ( 9 categories)  
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do they have to walk to be independent?   NO  
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how is independence defined for SB?   toilet transfers, bowel/bladder maintenance, dressing/self-care, indoor/outdoor mobility, level surface transfer, car transfer, bed mobility, tub/shower transfer  
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what is the primary reason for not obtaining independence?   limited cognitive skills  
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